Re: Please sign this petition my friends. Collateral Damage of the Homecare ...

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_Click here: Petition | United States Department of Labor: Don't remove the "companion exemption" to the FLSA until money is th_ (http://www.change.org/petitions/united-states-department-of-labor-don-t-remove-the-companion-exe mption-to-the-flsa-until-money-is-there#share) Please sign this petition my friends. My freedom to live outside of an institution is a life or living death issue for me, all my disabled friends our caregivers and millions of other like us.Our Caregivers could see their already crappy income cut so badly they wont be able to pay their rent! SHOW US THE MONEY! Here's my letter to the New York Times: Collateral Damage of the Homecare Rules -- In your editorial, "Homecare Rules in the Homestretch," you fail to understand the reality of living on government funded Medicaid and the Russian Roulette pistol aimed at the heads of the Seniors, People with Disabilities and our Home Care Workers who depend on it, every year when budgets are cut. Although overtime pay would be great for IHSS providers, in publicly funded Medicaid programs, states that are cutting IHSS (In Home Supportive Services) are not likely to provide overtime pay and will instead most likely cut hours worked above 159 hours a month for any one provider. There is a big move to push through these Department of Labor rules as written right now with no consideration of how they'll really play out in the homes of Seniors and People with Disabilities and their Caregivers in New York and California where people have over 159 hours of IHSS a month. I know of a proud union member, a mother over 60, who has multiple disabilities of her own and takes care of her adult son with athetoid cerebral palsy who will see her household income of about $2520 a month in California drop to $1431, as her hours are cut from 280 hours a month to 159 hours. She doesn't have the stamina to supplement her income with more jobs and she has trouble finding other caregivers because her son cannot be understood very well by others. The union has taken over $40 a month from her for check each month to lobby for what will cut her income by a pretty big fraction. 70% of the caregivers in California are family members whose households stay intact with IHSS. A cut in hours can threaten their ability to stay in their homes. Seniors and People with Disabilities with Live in Caregivers will be uprooted as well. Jerry Brown just got done settling a lawsuit trying to cut the IHSS program in California by 20% and settled for cutting it by about 8 percent. Do you really think he's going to take time and a half for over 50,000 providers? His representative on an Olmsted conference said they wouldn't. When I was in the Young Socialist Alliance in college, before I had my accident, I believed in theories in a vacuum. Then I became disabled and saw how these things work out on a real-life level. In California, we have the most highly advanced In-Home Supportive Services program, and the reason it was so good is that the disabled person received money to find somebody and all of that money went directly to the caregiver. The attendant got all the bang for the buck. And while ADAPT American Disabled for Attendant Programs Today was fighting to get In Home Care, this wonderful program to all the states, they came up with things like "Money Follows the Person" and "Community First Choice Option" where that money continued to go to the disabled person to pay directly to their caregiver with no middleman. But suddenly all kinds of profiteering is going on as big bad corporations and yes even sometimes big bad unions behaviors are immerging as monied interests smell a beautiful dollar to be made in the graying of the baby boomers. On a good day the union is our greatest blessing on a bad day they are our greatest curse. The only way to come up with a reasonable solution that takes everyone's welfare into account is to sit down and work it out. I think what's been most frightening to me in all of this is the ease with which able-bodied regard People with Disabilities as invisible. The SEIU would not even sit down at the table with People with Disabilities to work out a compromise. Would this happen to a person of color? Are we the last population to be seen as a fraction of a person -- or a person who is really there at all? People have been making industries of people with disabilities for decades, in the nursing home industry, the charity industry, and now the medical industrial complex and the unions too on a bad day. People from ADAPT clawed our ways out of nursing homes that were profiteering off of us and now we have to fight against the nursing agency industry, managed care corporations, and even at times a union that is so out of touch with its rank and file providers needs that it would create three crappy jobs from one not so good one in order to collect two or three union dues on a one house. It is the people disabilities and rank-and-file providers, who are in a symbiotic relationship, huddled together to keep industries and unions from objectifying us and moving us around like "furniture" in their business plans. You can choose to be naïve and come up with lovely little fairy lands in your own mind, but make no mistake, your naïveté will be paid for by the rank-and-file workers whose pay will be cut badly and people with disabilities who will go back to nursing homes. The ADAPT-NCIL compromise would simply eliminate the exemption for third party employers, treating Medicaid consumers in consumer directed programs (including public authorities, fiscal intermediaries and agencies with choice) the same as private employers so they can still use the existing exemption. According to the DOL analysis, this change - alone - would eliminate the companionship exemption for 70% of home care workers. It covers all of the "bad players" and concerns raised in the DOL analysis that exist in traditional home care while minimizing the negative impact on people with disabilities and preventing the unexpected consequences such changes would have on real live people in Medicaid funded programs. WHERE ARE our points of view in this newspaper? In the DOL discussions? Why include us? It’s only our bodies, our civil rights, our freedom to live lives akin to political prisoners in institutions! If anyone had any respect for people with disabilities we would have included us in the discussion. Nancy Becker Kennedy Appointed Member Since Its Inception Los Angeles County Public Authority Board PASC that oversees the In Home Care of over 200,000 Seniors and People with Disabilities Join the IHSS Consumers Union on Facebook at (https://console.mxlogic.com/redir/?2-CqenD4mjhOrhpuK_ssUr01eXrO5qBunMz6HqRc3gKc372lokrl-d0D2looCU-ztAQsz HFIIcIKorLOoVcsCej79zztPsdxoIgawHqDYKr7fTjvdEIKccECzAQsLFCTPhOr5P22hEw3FkQx8 -kONEwnlrxapoQgmH2TNxgQglc_4QgbHr2lok9Omd44mP_ErDUvf0srhdK6Qn1NEVppuKrtJEc) _http://www.facebook.com/groups/IHSS.ConsumersUnion/_ (https://console.mxlogic.com/redir/?LFCzBVN5AQsCQmnHLT7e6M0jKSYxmFnBY8NGSJj0Qbz0NMBm56Rvzg9MBm66XY Cej79zANOoUTsT3omb42EaSF_bCNPZQTPqbbz3a9EVd7bWpJYQsCNsMwAq80Wld8ifBcIq85RmUi Cmd45GMJYokd45jfNd42WSMBm52sBzh15I_W6V-7PM76QPrxJ5MsqemmnHCZta8RDdzOSkj) "Nothing About Us Without Us!" (Latin: "Nihil de nobis, sine nobis") is a slogan used to communicate the idea that no policy should be decided by any representative without the full and direct participation of members the group(s) affected by that policy. This involves national, ethnic, disability based or other groups that are often thought to be marginalized from political, social, and economic opportunities.